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“How One Cystic Fibrosis Patient is Thriving & Not Just Surviving; The 29 Year Journey of Livvy”

*Please Follow Livvy on Instagram, Twitter, and her popular blog:

https://www.instagram.com/seabreezecorner/?hl=en

https://twitter.com/seabreezecorner

https://seabreezecorner.com/about-me/

*Please follow the Cystic Fibrosis Foundations of the U.S. & the U.K.

https://www.cff.org/

https://www.cysticfibrosis.org.uk/

 

livvyhkhkjhk

 

southport lord street
Southport in Merseyside, England

In the beautiful seaside city of Southport in Merseyside, England, a scared 13-year-old girl first became aware of a monster that was literally attacking her. After begging her parents to take her home, she stayed in the hospital for days.   At a time when Olivia; or Livvy as her friends and family call her; should have been thinking about cute boys and spending time with her friends, she now realized that she was in for the fight of her life.

livy hospital

Livvy found out she had Cystic Fibrosis. Cystic Fibrosis is a progressive, genetic disease that causes persistent lung infections and limits a person’s ability to breath. In people with CF, a defective gene causes a thick, sticky buildup of mucus in the lungs, pancreas, and other organs. Year’s ago it was a death sentence with many passing away in their teens, but now the lifespan has been increased to 50 y/o with research increasing that number every year. In the U.S., famous former NFL Quarterback Boomer Esiason started a CF foundation that has raised millions for research after his 2-year-old son Gunnar was diagnosed with the disease. Gunnar is now 26 and is an advocate for CF with a fantastic website. Below are both websites to these highly regarded advocates.

https://www.esiason.org

http://www.gunnaresiason.com/

Blausen_0286_CysticFibrosis (1)

Growing Up With CF:

“I grew up an only child,” Livvy explains. “And that was mainly because my parents were afraid they’d have another child with CF. The kids at school never teased me but I was in the hospital every 3 months, which made it hard to make close friends. When people tried to get me to tell them what was wrong with me, I’d always tell them I had an asthma condition”.

When you have CF, it is a constant stress in dealing with the people around you as well. “I got my first boyfriend at 16 and even though he understood my disease, he kept it away from his parents fearing they would no longer allow him to see me.   When he would visit me in the hospital he would have to lie about my condition. I’m 29 now and I have an understanding boyfriend but I still feel a pressure from his family thinking I’m not good for him because I can’t have any kids”.

livvy

Not only do patients have to fight the stigmatism of having a terrible disease, but they also have to endure a daily ritual of medications and treatments. Few diseases take this much effort to keep oneself healthy. Another characteristic of CF is low body weight and depressed growth. Many with CF look much younger than they are due to this factor.

livvy hospital

The Daily Battle:

The daily routine for a CF patient is a grind that can’t be compromised. “I wake up hopefully after a good night’s sleep” Livvy says. “A good night for me is waking up twice to cough up mucus off of my chest. A bad night is when I wake up every hour, or not being able to sleep at all due to the coughing”.

Treatment starts right after she wakes up as she takes 2 medications through a nebulizer called an eflow, which delivers the medications rapidly. This takes half an hour. She then has to try and do breathing exercises to bring out more mucous which seems never ending. She then takes another type of inhaler and tries to get a bite to eat. “I also have CF related diabetes which makes eating consistently really important”. After breakfast she takes more medications, which includes prednisone, which helps her breathing, but it can worsen her diabetes and thin her bones.

e flow nebulizer
Something Livvy has discovered is that being physical fit and going to the gym for an hour a day is essential for improving her health. “I have to go every single day or my lungs suffer because of the mucous buildup. When the mucous starts to build up it’s just like I’m drowning. I do mostly cardio on a treadmill, an incline, or a rowing machine, as well as lift weights. When I return home I eat a high caloric lunch to keep my weight up and drink an Ensure supplement”.

The rest of Livvy’s day is an interval of taking medications to keep her lungs open and to eliminate the mucous, which makes breathing easier.   In between these treatments it’s also important to continue to eat enough calories to keep her weight up, and then checking her insulin to make sure it’s at a normal level.

”I hate going into the hospital for a 2 week course of IV therapy, which mentally can wear me out. Even though I am lucky enough to be able to drive home between treatments, I do have to sleep there. That leaves a lot of time by myself as we all have our own rooms on the CF ward”.

The UK Drug Controversy:

http://www.pmlive.com/pharma_news/nhs_england_to_vertex_come_clean_on_orkambi_offer_1244686

Whenever profits are placed over patients, the patients always lose. Such is the case for the latest CF drug that has not been released in the UK yet because the drug company and the governmental agencies are fighting over a price. The patients that need the medications wait and can only hope of getting a drug that could greatly help their condition while rich people in suits push papers and look at dollar signs. The drug companies obviously want to get every pound or dollar that they can out of the selling of the drug, and the governmental agency wants to pay as little as possible. “All I hope is that I don’t die before the drug is finally approved” says Livvy.   “On bad days my lungs are bordering on now needing a transplant and I get frustrated. It’s ok to have a bad day and to feel bad, but you have to rebound. I can quit or just keep working hard to keep as healthy as possibble and try to be positive. I choose the latter”.

(below is a video of a day in the life of a CF Patient)

https://www.youtube.com/watch?v=qmzvCnt5cHA

livvy final

A Positive Outlook:

Livvy, like so many CF patients, is an inspiration. Their positive outlook against a terrible foe touches and motivates many around them. She has a growing Instagram and Twitter page as well as a positive and fun blog where she shares her life and her story. “If you have CF”, encourages Livvy,”then PLEASE exercise and work out every day. Also you need to have dreams.   I want to get a house with my boyfriend and work on the side part time, or even volunteer. CF patients find it very hard to work full time but right now I’m working on being as healthy as I can be”. Presently Livvy gets the UK version of what we call disability in the U.S.   She is close to her family and looks to grow her online fingerprint while improving her health.

Livvy’s health sometimes can wear her out physically and mentally. “I’ve struggled at times and it is hard to do so much to just keep my health at a stable level.   Sometimes I worry if I will ever get to use the new medication that I know would help me. What I am going to do though is keep fighting, and keep doing what my doctors tell me to do. I want to be a warrior, and not a worrier”.

livvy dog
Livvy celebrates her dog’s 11th birthday

About 16 years ago a young 13-year-old girl first saw the monster that was attacking her. Through perseverance, hard work, and great determination, she now is a lovely adult woman looking ahead to the future. It’s definitely not easy at times but she fights for every breath and every moment. With her family and friend’s support and the help of her medical team, my money is on Livvy. She is proving to be a small package of heart and spirit who is taming her goliath with a positive energy and a smile, while inspiring others along the way. A CF Warrior indeed.

 

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“Greg Papa’s Frank Response on Why He’s no Longer The Oakland Raiders Radio Announcer”

greg papa firing

On his show on 95.7 The Game, Greg Papa answered any and all questions about his departure from the Raiders. It was definitely must listen to radio.

Marc Badain the President of the Oakland Raiders texted Greg Papa on July 2nd stating that they had to meet in person.   Papa met Marc on July 5th and at lunch Marc said they were not going to bring Papa back. Greg wondered why now and Badain said he bought Greg a few years by defending him. I’m thinking this firing in late July is a big bite me to Greg. It’s near impossible for him to get a gig doing NFL games so late in the year other than a few here and there.

https://957thegame.radio.com/articles/greg-papa-tells-story-his-departure-oakland-raiders

“On January of 2014 I heard the Raiders were going to interview Mike Shanahan for head coach. The interview didn’t go great so I didn’t think it would happen, but I said it was beyond my comprehension that Mike Shanahan could be interviewed because Al loathed him. Rod Woodsen and Bill Romanowski were campaigning for Shanahan to be the head coach and I couldn’t believe it”.

In his first meeting with Badain when he was first hired, Badain said that Greg had to patch things up with Mark Davis. Greg stated that he called Mark Davis early the next morning. He said the call did not go well after he said he would not apologize to Mark for his comments about Mike Shanahan. Davis hung up on him. Papa has admitted that he warned the Raiders that he would quit if Shanahan was hired and that put Mark over the edge. He said that he felt like he was public enemy number one after that and was taken off some of the things that Al had always wanted him to do.  He saw Davis once and said hi to him and Davis ignored him and just walked on by.

Papa Calls Out Blogger’s/Podcaster’s With the Wrong Information:

Greg said the misinformation that was written about by bloggers was comically wrong. “I’m not much into social media but Boy, some of the crazy stories were so wrong”. He stated that he never was asked to go to Las Vegas and he never said that he would not go. In fact he admitted that he would have gone and that flying to Vegas for the weekend and doing a game was no big deal to him.

Why Greg Is So Loyal To Al Davis:

Al was loyal to the end.   Former Raider executive John Herrera probably said it best in a 2012 interview with SFGATE. “Al was so demanding. He would sometimes call you at 1 am just to see if you were on the ball and if you did what he asked you to do. There were no cell phones back in the day so we had to be around our home phones when we weren’t at work. Once he trusted you and knew you’d do a good job though, you had a friend for life.   He helped people financially, personally and if you didn’t need help he made sure you got tickets when you wanted them”. These stories are still refreshing in a day and age when few can do something nice without posting a video of it on social media.

That’s the relationship Greg Papa had with Al Davis. Unlike the great Bill King, Al became close to Greg. Greg was the new guard in announcers. Fans started to change and most wanted their announcers to be more “homers” than objective and Greg fit right into that mold. He would criticize at times, but rarely was he super negative about the Raiders where Bill King at times would be brutally honest if they played poorly. Greg became very close to Al who appreciated his loyalty and some publications have stated that Greg was a possible front office hire for the Raiders in the future.   “Al was like a second father to me,” Papa said. Many in the media said Greg was the semi mouthpiece of Al when Mr. Davis became very ill.

It must have been hard for Mark Davis to watch his father be so close to some people. The stories about how Al treated Mark at times are uncomfortable to listen to. Let’s face it; if Al thought a lot about his son he would have been in an important job in some capacity. Instead the only job Mark Davis has really ever had in his life is some minor PR jobs for the Raiders.

Who Is In the Wrong:

Probably no one. I don’t think that Mark Davis is a bad guy but he had pretty much little to no work history and now he owns an NFL team.   To be fair, running a business is really difficult even with a lot of experience. Mark Davis wanted respect and loyalty from Papa and let’s face it; Papa doesn’t respect him.

I get what Greg is saying. I love my dad and I’m loyal to the nines. In fact in my first 2 years in business, 2 businesses my father despised wanted to work with us and I declined.   Let’s be real; Mark and Al Davis probably weren’t Ward Cleaver and the Beaver, and Mark’s actions prove it. Like I always say, actions show a man’s heart, and their words are the B.S. to cover over those actions.

I greatly respect Greg Papa and I understand. You remember being down or just starting out and someone takes a chance on you and you make it and it’s something you never forget. In today’s world that type of loyalty means little to nothing to some people. People only look at if that person can help them or not.  To Papa it meant everything.

Greg also see’s one of the greatest minds in pro football history pass away and his new boss is his son who never had much to do with the team and has little or no job history in 6 decades of life. I’m sure underneath Greg wasn’t too happy, or impressed.

I feel bad for Mark in a way.  I can also see Mark’s side and it must have been hard to watch Greg get so close to his father. I don’t blame Mark Davis for wanting to be his own man but I think there are a lot more motives to all these changes than that.

Jim’s Jam’s:

Greg Papa has now gone the way of Hue Jackson, Amy Trask and John Herrera. The changing of the Al Davis guard is pretty complete. The 300-pound gorilla in the room that no one wants to talk about is the complicated relationship between Mark Davis and his father. He wants to literally start over in Las Vegas while pushing the reset button.   Davis needs to realize in the NFL world he has to earn his way and earn respect. With popular Greg Papa, he obviously didn’t.

Mark Davis is trying to find himself as a person and as an owner.   Today’s cynical and shallow age is a hard place to do it in especially if you are in your 60’s. And what I found out is that a radio announcer would lose a job he loves beyond measure for the loyalty of a man, and the very person who is firing him for his loyalty is the son of that man. This is a lot deeper than anyone wants to admit.

“Raiders Grades; How to Fix the Defense & Amp The Offense After Loss to Falcons”

crabtree
“Raiders WR Michael Crabtree Scores a 2nd Half TD”

Final Oakland Raider Grades @ home v.s. Atlanta Falcons; Week 2:

Atlanta Falcons  35 (1-1)

Oakland Raiders 28 (1-1)

Whichever way you look at the Raiders loss to the Atlanta Falcons, this was a bad loss. The Raiders have a brutal schedule the last month and a half of the season so playing well in the first half of 2016 is a must. Let’s look at what happened.

Quarterback:

Derek Carr had another good game. The Raiders averaged 6.6 yards per reception though; Matt Ryan averaged 11.6. For the second straight week the Raiders came out sluggish and struggled scoring in the first half.   You’d think at home they would come out blazing but they didn’t. Just like with Julio Jones, teams are doing their best to take away the long ball to Cooper so Carr and the Raiders have to be patient. The slant to Cooper and Crabtree are there all day. Carr made a point to throw to the tight end Clive Walford and he had a nice game.

GRADE: A

Carr made a mistake trying to heave the ball long. With teams trying to take away the deep bal he has to be patient. An interception was taken away due to pass interference which is getting annoying in college and pro ball. Too many PI’s. The Raiders are a little too conservative for my taste but overall the offense rolled against 2 bad defenses. The hopes are that will continue against better competition.

Running Backs:

All off season fans were clamoring for a big trade at RB. They were wrong. The Raiders have a ton of talent at RB and I said that all summer. Jalen Richard and Deandre Washington hit the holes like rockets and Latavius Murray has obviously been motivated by his cut in playing time.   They ran for 155 yards rushing on 6.2 yards per gain. Can’t get better than that.

Grade A-

Murray again was on the bench on key downs. On the 4th and 2 play, Richard took the handoff and not Murray. The Raiders finally get it and using all of their RB’s is the thing I hoped they’d do.

Offensive Line:

I literally cannot wait for the Denver Broncos DL to go against the Raiders OL. Will that be fun or what. Right now no offensive line is playing better. The Saints and Falcons were 2 of the worst defenses last year, but it still is a great sign. The Raiders will go as far as the health of the OL. That is the strength of the team. Carr has all day to throw.

Grade A+

Injuries are their main enemy.

Wide Receivers:

I’ve said it a million times, most teams are now taking away the deep ball to Cooper. The Falcons had one of their safeties shadowing the side where Cooper was on at all times. We laughed on one third down, because one of the Falcons safeties was so far back it looked like he was receiving a punt. Overall another big day for the Raiders WR. Crabtree might be the best possession WR in the game and the slant to him is near unstoppable. How the Raiders drafted DHB over Michael Crabtree is just beyond me but I need to get over it.   Andre Holmes made a great adjustment on the last Raiders TD. Clive Walford had a big day and that really opened up the offense.

GRADE: A-

The only blemish was Coopers mistake of going out of bounds. In the pro’s as long as it’s not an illegal push, the defender can push you out of bounds. Cooper said later he was unsure about the rule.

Defensive Line:

The Raiders do not have a pass rush. On many of the big plays for Atlanta, the Raiders blitzed but it was picked up. Atlanta RB’s did a great job blocking. Many fans say blitz when the pass rush isn’t good but it’s not that easy. If the blitz is picked up then you are really in trouble.

The Raiders have 7 QB hits and 2 sacks in 2 games. They also are not getting the push that is needed. Jihad Ward and Darius Latham took 47 and 25 snaps respectively at DT and Dan Williams and Jelly Ellis took 15 & 17. Unfortunately Ward & Latham could only muster a combined 3 tackles, 0 sacks, 0 QB hits and 1 pass deflection. I think Williams and Ellis need to get on the field more because this present lineup isn’t cutting it.

Khalil Mack is playing pretty well against the run, but he has had little effect with his pass rush.   He has no sacks and Irvin has only 1.   Irvin also only has 6 tackles in the first 2 games combined. I said at the start of the year, I question whether Irvin is the answer in the Raiders pass rush.

The run defense was also bad giving up 139 yards for a 4.8 yards per rush average. How big is that Aldon Smith suspension now. Raiders DT Stacy McGee got the only sack of the game for Oakland.

Grade: D-

After watching the Raiders DL and then watching Andrew Luck run for his life against Denver, you realize the Raiders DL just isn’t good enough right now.

Linebackers:

The Raiders do NOT have an LB that can be considered a great run stopper or pass defender. Ben Heeney would be great off the bench to add depth and spell a player but he’s not a starting LB. I’ve been saying that since he was drafted. He just doesn’t have the speed. He’s also on the smallish side and teams are now running at him.

With the safeties helping out to stop the deep ball to Julio Jones, this left the LB’s to cover the tight ends. That was a disaster. With Matt Ryan getting time, the Raiders LB’s were overwhelmed. The play action passes opened up the Atlanta offense by fooling the DB’s and LB’s.   Add the good running for Atlanta and the Raiders were on their heels all day. Malcolm Smith struggled as well and Cory James was of little help when he came in for Heeney.

Grade D-

The LB’s right now just aren’t good.

Defensive Backs:

Raiders 1st round pick Karl Joseph was a popular topic in the local media last week. The Raiders coaches tapped dance around the questions but the vibes are that they are bringing Joseph around slowly and that he still has a lot to learn. They are excited about his future but right now he’s going to play mostly special teams.

David Amerson played fairly well but Sean Smith and Reggie Nelson looked awful. Talking to Tim Kawakami, Jack Del Rio also wasn’t really happy with the soft coverage of DJ Hayden late in the game.

Reggie Nelson was responsible for helping keep Julio Jones deep routes in check. You won’t find these in the stat sheet but Nelson was out of position often. On the slant to Jones TD, Smith was looking for Nelson to help in the middle and Nelson was way wide. On the long pass Nelson let Jones get behind him and he took a bad angle to the ball.   Angles are huge for safeties and Nelson seemed very out of sink. Both are also too passive. Smith just lets WR come off the ball without any effort to be physical with them. He and Nelson seem very passive out there.

Smith was a nice player for Miami but he really got his reputation at Kansas City which allowed him to get a big money deal with Oakland. In the 3 years that he was at Kansas City, the Chiefs were at least a top 6 team in defensive sacks. You wonder how much the great pass rush of the Chiefs attributed to Smiths play and reputation.

Grade F  

The pass rush has to wake up or this group is toast. Joseph isn’t ready to play yet. The Raiders need to try something new like bring in TJ Carrie to play a corner position or have him play safety along with Keith McGill. They need to try something because this is ugly.

Coaching:

Some fans hated the Raiders going for it on 4th and 2 but I think it was the right thing to do.   The play call though was bad. If they did a play action pass and throw a quick out to Crabtree or Cooper, they get an easy first down. The Falcons DB’s were so leery of the deep ball they we’re even playing off the WR at the goal line.

If I’m Bill Musgrave I realize what Don Shula did when Dan Marino was his QB. The Dolphins defense sucked but they had a great offense.   Use it. To win you have to outscore the opponent. To score 28 points against a bad Falcons defense isn’t enough. The Raiders need to come out no huddle at the start of the game and play like it’s their last drive of the season. The Raiders don’t seem to open things up or play with urgency until they have to. They have to get a killer instinct. Teams are taking away the deep ball, so nickel and dime them to death. The Raiders did that today but another slow start hurt them.

Ken Norton is taking a lot of flack but if you go back and watch the game, on many of the big plays for the Falcons, the Raiders rushed 5–6 guys. Fans are fickle. If the team does well the players get all the credit. If the team isn’t doing well, blame the coaches.   I don’t know if it’s hero worship or whatever but it’s the way it is. There comes a time though when Irvin, Mack, Smith and Nelson have to earn their money. Right now they aren’t.

Grade C+

Personally I think the Raiders should be aggressive to start the game and create an up tempo to overwhelm teams. Jack Del Rio may call the defensive plays next week but unless he can play LB and Willie Brown and George Atkinson can find a time machine, this defense is in trouble.

Special Teams:

The long punt return resulted in a field goal for the Falcons. Taiwan Jones allowing the ball to bounce off of him on a kickoff resulted in terrible field position. Janikowski missed a 58 yd field goal but it’s hard to get on him for that.

Grade C+

Marquette King is really punting well. The punt return defense struggled on 2 returns and the Raiders return game was not a factor.

Conclusion:

However you slice it the Raiders should not lose to the Falcons at home. This is not a good defense.  The Raiders offense is going to have to be the key to their wins so they need to score as many points as humanly possible and be aggressive for 60 minutes.

I would be much more up tempo offensively, especially in the first half. Defensively the Raiders have to change things up. I’d bring in TJ Carrie to start at CB or Safety. Carrie has had his bad moments too and isnt going to fix this defense, but they have to try something. I’d also continue to be aggressive blitzing but I’d blitz the CB or safety more. The Raiders have to get to the QB to help the DB’s.  Defensive Linemen Dan Williams and Jelly Ellis are too good to ride the bench.

I still think the Raiders can get to 10-6 but they can’t lose games like this especially at home.   Next up is a very winnable game @ Tennessee. The schedule is fairly easy; but the travel isn’t.

“I Used to be an Open Book; Learning the Hard Way Why We Need Online Privacy”

girl-covering-mouth open book

(below is an updated version of this article)

https://jimjax4.wordpress.com/2017/07/21/update-my-horror-stories-why-im-no-longer-an-open-book-online-privacy-overview/

“I’m an open book”, said the naive person.

I’M AN OPEN BOOK!  Some even brag about it like it’s a badge of honor.  I learned the hard way how naive a statement that is.

I remember one time I was out with friends and one of them said how they admired that I was the type of person that was the first to try new things or to do something new instead of just following what others think or did.  Another friend laughed, “yea, Jim is the dumb one that does it first and finds out all the mistakes so the rest of us don’t have to go through it”.  They both were probably right.

I remember going online years ago as a kid.  I was in wonder over the internet.  I put in an AOL disk that I got in the mail.  At 14.8, the speed at that time seemed so fast.  The internet really didn’t have that many websites but I was amazed.  Over time I started using things like Yahoo, EBAY and Paypal.

I have always wanted to think that everyone has good in them.  In reality our culture has changed and not for the better.  Morals and character are harder to find and the evil that we see in the news is pretty scary.  Are all people bad?  Of course not; but ask the thousands that get bullied online every day how things have changed.

(one billion people lose their identity in Yahoo security breach)

https://www.washingtonpost.com/news/capital-business/wp/2016/10/17/one-billion-reasons-why-the-yahoo-cyber-breach-matters/

How Social Media & The Internet Has Changed Our Communication:

The internet and social media is fun and has a lot of great rewards, but it also has a downfall.  It has made many people dysfunctional communicators.  Some people in business and in personal relationships are like Hemmingway in emails, texts and chats.  Get them in person and their personality is that of a napping frog and their communication skills are as good as one of the Teletubbies.  Look at people on dates; many don’t even talk to their partner.  They are texting others, looking at videos or even flirting with other people.  Go to a movie theater and try to find people that aren’t texting someone.  We have the attention spans of puppies on espresso and as a culture, we seem to use guesses, mind reading skills or jedi mind tricks to communicate with each other instead of just talking directly.

We Are Much More Open to Promote Quicker Communication:

Most Psychology studies shows that it takes a good year to really get to know someone. That’s a lifetime now.  Instead of getting to know each other, we use Facebook, Linkedin, and Match.com, or other sites to almost “instantly” learn about someone.  The problem is it’s shallow, lazy and dysfunctional at times.  It takes time to get to know people whether we are finishing each others sentences or not.  I’ve seen people move in with others after days of meeting someone on a dating site or they go into business with someone they barely know after meeting online.  It’s sheer madness.  We want it and we want it now.  The problem is you have to build a foundation be it business or in your personal relationships, and it’s more than a profile or mouse click away.  Affiliate marketing is a huge part of internet business and in reality you are joining an unknown business run by people you don’t know.  It has a 95% fail rate for a reason.

I’ve lost my identity twice and I once was used in a scam.  Between scammers and EBAY itself, it’s hard to tell the good guys from the bad.  Once two German hackers got into my EBAY account and started to put up fake adds selling high end Apple products and ended up stealing about $30,000 from people having bidders send them money by western union.

The Dangers of Being An Open Book With Online Dating:

I remember being an open book on Facebook the last 5 years especially in the dating scene when I became single.  After a while people would show up uninvited to my house and work.  I had one girl that I chatted with a couple of times do a search on me and found my business.  We had coffee once and I knew she was not the person for me plus she looked too young.  One day I came into my office to see patients in the afternoon and my secretary said, “you’re girlfriend is here”.  Well that was strange because at the time I didn’t have one.  I walked in and this cute young girl who couldn’t have been 22 was there.  I asked her what was going on.  I talked to her long enough to make sure she didn’t have an ax or Lizzie Borden tattoo, but I still wasn’t comfortable.  I eventually got rid of her.

One night when I was coming home from work, a man was sitting on my porch.  It ended up being a patient; kind of a borderline mentally ill patient that was a pretty scary guy.  He found my information from LinkedIn and Facebook and did a search on me and found my home address.  It was 11:30 pm and he asked if we could talk and if he could come in.  I actually saw my neighbor looking at him and I talked him into leaving and that if he was having issues that he should go to the ER.  I slept with a loaded gun next to my bed just in case.

I write online at times for political sites and I was Mr. Open Book then too.  Unfortunately I said something some people didn’t like and I started getting death threats.  Someone emailed me a photo of my front yard saying he was watching me.  I called the police but I was paranoid whenever anyone came by.

The worst situation I had was a girl I met online and we started to talk.  She lived near me and asked to meet.  We met a couple of times and would text and talk on the phone sometimes but just friends stuff.  There was just something not right with her and my spidey sense was tingling.  I told her that we should be online friends and that maybe one of these days we could get together again but that I was really busy at work.  I’m not a sleazy person and I don’t sleep around like a lot of people do so I just felt uncomfortable with being that close.

Some pretty girls rarely if ever hear the word no from a guy and she didn’t take it well.  She went crazy.  She started freaking out telling me who did I think I was and that she could get guys 100 times better than I was.  She then said I was messing with her and that no one messed with her and got away with it.  I’ve always tried dating the sweet, girl next door types so the psycho high maintenance I’m going to kill you while  you sleep type of girls were never my thing.

At about 12:30 am I began to get texts.  Now I have a lot of friends that text me at that time because they are night owls and usually bored; but this was different.  It was a girl asking to meet and have sex.  She then began to talk about things that we can do that I’m not quite sure are physically possible; I mean I looked it up and I don’t think those parts go together or can bend that way but I still could be wrong.  Anyways, I texted her back saying she had the wrong guy and told her to stop texting me.  I found out that angry woman had put an ad with all of my information and photo on a sex add on Craigslist.  Craigslist actually told me to call the police.  I warned her and she took the ad down.  Instead of taking my time and being careful, I was an open book with all of my personal information on Facebook and LinkedIn and I let my walls down.

(Yahoo scans emails to give to the government)

http://www.businessinsider.com/r-exclusive-yahoo-secretly-scanned-customer-emails-for-us-intelligence-sources-2016-10

Protect Your Photos:

You want to talk about open books, just go on Twitter or instagram.  People put up naked or sexual photos literally potentially ruining their reputation.  I knew a nurse once who got fired and many felt the reason was her Facebook photos that were extremely sexual.

It just blows me away how people can send near strangers naked photos of themselves and even videos.  It’s both dumb and risky at the same time and lacks class.  I know many are insecure these days needing lots of attention but man.  Once something is on the internet it is there forever!  Photos are easily stolen and I found out the hard way how people can use them to try and embarrass you or make you look bad.

Take Back Your Privacy:

I realized then that between big business pimping out our web surfing habits, locations, purchasing habits, and all of our social media information, I was not going to be used or exposed.  Now Samsung admits to recording us through some of their tv’s and appliances are the next to hook us up online.  Unfortunately there is only so much we can do to protect our information, but I’m determined to keep my accounts as private as possible.

I finally said “enough”.  I had written for many publications online but I started over.  I got a pen name and I stopped posting up family photos and giving personal information.  I closed all of my social media sites and started over.  I told my 3000 Facebook followers that I was moving on and that it had gotten too weird for me.  Magically all of the drama ended shortly after.

A New Lease on MY Online Life:

I started to write again and it felt good to not be weighed down by internet drama.  I’ve now restarted and I’ve been much less open online.  The drama is mostly gone.  Even though I have over 40k followers on my two Twitter accounts, I keep people at a distance. I now don’t have to deal with the nonsense.  I don’t put my real birthday online, or my address or my name, and I’ve slowly created safe, fun and healthy online relationships with some turning into friendships.  I’ve used Google voice for contact phone numbers and I feel much safer.

Social media and technology has entrenched a high level of trust in the latest generations and I worry about them.  Corporations have slowly eroded their sense of privacy and their respect for it.  I think some would put blood sample results online if they were asked to; they are open books and trust everyone.  They don’t have any money now but when they get older and start making money, taking their identities will be like taking candy from a baby because they are so trusting.  It’s even a risk with our money.  When I met with my banker once he spoke under his breath and told me not to use the banking application because in reality financial apps in his opinion were not safe.

Linked in is the worst.  Why in the world would I tell about myself and my business to people that are competitors so they could know what I am doing and what I’m working on.  I was taught to keep things under wraps.

It used to drive one of my ex girlfriends insane when every where we went; or even if I was online; people would tell me their life stories.  I’ve talked to people at times who will tell me their most innermost secrets and I barely know them.  Maybe in a way people are just lonely and with all of the dysfunctional communications, they just need a human being to actually talk to in person.

The Moral of The Story:

People can do what they want but I think people need to wake up and not be open books.  For our jobs some of us are forced to be as open as possible but on our personal accounts it’s our choice.  The world isn’t as safe a place anymore and people need to be much more careful.  You shouldn’t be a fearful hermit, but you also shouldn’t be Shirley Temple.  It takes one identity theft, one bad thing said online, or one picture to ruin a reputation and cause years of headaches.  Sorry Steve Zuckerberg, Apple and Google; I’m not trusting you any more.  Learn from my mistakes; I always make them before everyone else does.